tag:blogger.com,1999:blog-6569482492645810768Mon, 07 Dec 2009 06:11:45 +0000http://fourinthefam.blogspot.com/jesscaandrews@aol.com (Jessica)Blogger91125tag:blogger.com,1999:blog-6569482492645810768.post-7084030825227254276Mon, 30 Nov 2009 19:43:00 +00002009-11-30T13:00:24.679-07:00So today Jonah and I went to see the doctor. I was a little nervous of what she'd say knowing all about Fridays trip to the ER. I was afraid she would listen to him and decide it would be best for him to be admitted. Luckily she didn't say that. She had agreed that he sounded bad, but reassured me she has heard him sound much worse. She was a little taken back on how much oxygen he was using, so http://fourinthefam.blogspot.com/2009/11/follow-up-with-doc.htmljesscaandrews@aol.com (Jessica)6tag:blogger.com,1999:blog-6569482492645810768.post-452758259546007339Sat, 28 Nov 2009 07:38:00 +00002009-11-28T01:09:50.426-07:00I am so tired of Jonah being in respiratory limbo. He had started a little cough on Tuesday, I really paid no attention hoping that it would pass. On Thanksgiving he was sounding a little worse but it was Thanksgiving and I really didn't want to bother his pulmonary doctor, so I began treatments timing 3-4 hours apart. We made it through our Thanksgiving feast (that I cooked, I might add) and http://fourinthefam.blogspot.com/2009/11/no-ambulance-ill-drive.htmljesscaandrews@aol.com (Jessica)8tag:blogger.com,1999:blog-6569482492645810768.post-9042613717956561565Thu, 26 Nov 2009 05:26:00 +00002009-11-25T23:07:04.550-07:00When Jonah was first sick I remember feeling like something was taken from me. I was upset at the world, at myself, at my husband, at my work, at the doctors, just anyone who ever was in my life. I was hurt and I was sad. I didn't know nor could I ever imagine the blessings that were in store for my future. Today I can say that I am greatful, truley greatful for these things:My family, we may http://fourinthefam.blogspot.com/2009/11/so-much-to-be-thankful-for.htmljesscaandrews@aol.com (Jessica)2tag:blogger.com,1999:blog-6569482492645810768.post-4411237834830972970Wed, 25 Nov 2009 04:47:00 +00002009-11-25T13:36:16.452-07:00Jonah and I headed up to the children's with special needs building this morning. We met with an angel. I'm not even kidding. Terri was fabulous! We spent a good 3 hours up there and learned so much. I had the chance to talk with a psychologist about Jonah's behavior. While we were there J was fitted for a helmet and got his new little feeding chair sized to suit him. I will write up a letter http://fourinthefam.blogspot.com/2009/11/jonah-his-new-walker.htmljesscaandrews@aol.com (Jessica)6tag:blogger.com,1999:blog-6569482492645810768.post-6198131796556998328Tue, 24 Nov 2009 06:08:00 +00002009-11-24T06:37:48.046-07:00Today strated early, or yesterday never ended...I'm not sure. I just know my feet are killing me, my bed is calling me, it's 11:15 at night and I am still waiting for laundry to finish. And then...finally...GO TO SLEEP. I hope Jonah didn't here me type that! Heaven knows as soon as I fall into my nice warm bed Jonah decides it's probably time to let out a heart wrenching squeal! And from there...http://fourinthefam.blogspot.com/2009/11/new-post.htmljesscaandrews@aol.com (Jessica)4tag:blogger.com,1999:blog-6569482492645810768.post-4188489362680192684Tue, 17 Nov 2009 19:22:00 +00002009-11-17T12:57:26.479-07:00Drum roll please...Jonah just got his first shot of Synagis!! We had his happy birthday well child check and it went great! For the First time since all this medical stuff started Jonah is on the chart!! His head circumference just makes it, but I am so happy his head is finally growing!(perhaps it is just swollen from all the head banging) He is now 30 in in height and weighs 23 lbs He has http://fourinthefam.blogspot.com/2009/11/can-i-get-whoot-whoot.htmljesscaandrews@aol.com (Jessica)4tag:blogger.com,1999:blog-6569482492645810768.post-1511063734556480193Mon, 16 Nov 2009 19:58:00 +00002009-11-16T13:09:30.105-07:00I could cry right now. I have been on this blog stalking, googling craze and face book frenzies for so long just looking for another child who may be dealing with similar issues as Jonah. I was starting to just deal with the fact that he may be all alone in this disease. It has been very heart tearing. Last night as I went through my one hour of all things listed above, I decided to check on a http://fourinthefam.blogspot.com/2009/11/prayers-are-really-answered.htmljesscaandrews@aol.com (Jessica)4tag:blogger.com,1999:blog-6569482492645810768.post-7928354833945653181Tue, 10 Nov 2009 06:15:00 +00002009-11-09T23:48:01.027-07:00Last night I made a big deal about how I am a changed women! And by that I meant that I was now going to be going to bed no later then 9:45pm and 10 at the very latest. Well here I am at 11:16pm typing away at my blog waiting for a test to load up for my music class. Life is like a box of chocolates. In an instant so much can change. Some times for the better, and sometimes for the not so good. http://fourinthefam.blogspot.com/2009/11/life-is-like-box-of-chocolates.htmljesscaandrews@aol.com (Jessica)7tag:blogger.com,1999:blog-6569482492645810768.post-4926716401580921195Sat, 07 Nov 2009 14:53:00 +00002009-11-07T08:19:54.107-07:00My baby is two today. I am filled with lots of emotion. I am so grateful to be celebrating Jonah's second birthday with him. He has come so far. He is truly an example to me. He reminds me daily not to judge others, to be all that I can be, and to smile, even at the little, very little things in life, and to remember life is good.I wish that we could have a big celebration for Jonah. Unfortunatlyhttp://fourinthefam.blogspot.com/2009/11/happy-birthday-jman.htmljesscaandrews@aol.com (Jessica)4tag:blogger.com,1999:blog-6569482492645810768.post-8687104884330018882Tue, 03 Nov 2009 18:50:00 +00002009-11-03T12:16:21.229-07:00About six months ago I met a young lady in her early twenties who like Jonah, suffers from Bronchiectasis, and has just been denied for a lung transplant. At this point it would be to risky for her. She has been my go to gal for many questions that I have about the disease. It breaks my heart to know that she is not doing well. She is amazing. She is brave.I read this poem and thought of her and http://fourinthefam.blogspot.com/2009/11/flame-of-hope.htmljesscaandrews@aol.com (Jessica)4tag:blogger.com,1999:blog-6569482492645810768.post-8409181590925026602Thu, 29 Oct 2009 16:42:00 +00002009-10-29T11:52:54.599-06:00I took a few Pre-Halloween pictures last week at a party we went to. Jonah a Pumpkin and Morgan an Astronaut of course.http://fourinthefam.blogspot.com/2009/10/happy-halloween.htmljesscaandrews@aol.com (Jessica)7tag:blogger.com,1999:blog-6569482492645810768.post-8018279286214257537Thu, 29 Oct 2009 02:59:00 +00002009-10-28T21:26:26.965-06:00If I had a million dollars... I'd be rich.first I would pay off these ridiculous medical bills that will forever haunt me, and in some cases never stop growing.I would hire medical respite care for a few hours each week (mom's need a break too)I would then hire respite care for some other mamas I know, who also need a break ;)I would add another bathroom to my house with a full add on to the backhttp://fourinthefam.blogspot.com/2009/10/one-million-dollarswhat-would-you-do.htmljesscaandrews@aol.com (Jessica)2tag:blogger.com,1999:blog-6569482492645810768.post-1973861266096792380Sun, 25 Oct 2009 20:00:00 +00002009-10-25T14:15:15.689-06:00I have some worries about the H1N1 vaccine. I will not be having Jonah vaccinated. I have read to much about it and it scares me. Though many of you may think I have lost it by not getting him vaccinated from the H1N1, I have my reasons and I will gladly share them with you upon request. I do however have to throw in that when the doctors ask me why I am not getting him vaccinated, I cut them http://fourinthefam.blogspot.com/2009/10/stopcall-first-or-go-home.htmljesscaandrews@aol.com (Jessica)3tag:blogger.com,1999:blog-6569482492645810768.post-8463310735097347995Tue, 20 Oct 2009 21:33:00 +00002009-10-20T15:53:30.808-06:00Today is "A Grand & Glorious Day!" At 3:00pm I received a phone call from a very familiar number. I saw the number reading across the screen of my phone and I resorted back to my magical thinking. Which finger should I use to answer the call with, should I answer or let it go to voicemail??? All of my weird and strange thinking fell to a halt as I answered the phone, "Hi Rick." "Hi there Jessica,http://fourinthefam.blogspot.com/2009/10/today-is-grand-glorious-day.htmljesscaandrews@aol.com (Jessica)4tag:blogger.com,1999:blog-6569482492645810768.post-5506221517144228186Mon, 19 Oct 2009 23:38:00 +00002009-10-19T17:51:26.759-06:00Jonah's eyes are outlined pink. The pinkness is similar to an asthmatic's eyes, post asthma atack. I have noticed signs of sickness with this kid and that is usually my first red flag. I took his temp and it was a cool 98.7 However he has had only consumed 3/4C rice cereal, and 1/2C of yogurt. I had to put all his meds through his feeding tube (usually he will take one or two by mouth)Of coursehttp://fourinthefam.blogspot.com/2009/10/cross-your-fingers-hes-not-sick.htmljesscaandrews@aol.com (Jessica)0tag:blogger.com,1999:blog-6569482492645810768.post-7057425949304567320Mon, 19 Oct 2009 14:58:00 +00002009-10-19T09:48:59.541-06:00I would be lying if I said that being Jonah's mom is an easy job. I find as the days turn to weeks it is getting harder to give %100 percent. That is hard for me to deal with, frustrating really. frustrating because I am in charge of me, and the fact that I am so emotionally exhausted, that some days I just wait for the clock to read a magical number so that I can proclaim it nap time. As some ofhttp://fourinthefam.blogspot.com/2009/10/not-easy-job.htmljesscaandrews@aol.com (Jessica)3tag:blogger.com,1999:blog-6569482492645810768.post-4284199801114117550Tue, 06 Oct 2009 15:25:00 +00002009-10-06T17:08:12.285-06:00* managed to climb into & fit into every cupboard or cubby hole in his room* Tried to be super man and fly out of his crib (Dr.caught him...Feww!)* He now has 2 signs on his door that read 'Falls Risk'* When painting Jonah has decided it's best to taste each color before using it* Every time a female nurse comes in to his room Jonah feels the urge to drop his Binky so she will pick it up for him.http://fourinthefam.blogspot.com/2009/10/funny-things-my-jman-did-during-this.htmljesscaandrews@aol.com (Jessica)3tag:blogger.com,1999:blog-6569482492645810768.post-1769778588564114076Tue, 06 Oct 2009 15:17:00 +00002009-10-06T09:25:20.188-06:00The lab finally got their stuff together and sent report on Jonahs CT:The Bronchiectasis seen in the lower lobesis moderate in degree and involves the lower lobes diffusely. There is also some Bronchiectasis seen in the right upper lobe. This Bronchiectasis is present on both studies and is not appear to have significant change. Scattered areas of atelectasis are seen in both lungs.Over all I am http://fourinthefam.blogspot.com/2009/10/ct-results-are-in.htmljesscaandrews@aol.com (Jessica)2tag:blogger.com,1999:blog-6569482492645810768.post-599596381761046516Sat, 03 Oct 2009 21:16:00 +00002009-10-03T15:24:51.483-06:00The wonderful dr. Pfeffer came in today around noon. She listened to our little man and was impressed that he sounded so good. This is exciting to hear! This means that these long days of hospital life are paying off. He is responding quite well to his clean out. Today marks day number 9. I was in great hopes that Jonah would be able to come home tomorrow. I could tell by her face she wasn't http://fourinthefam.blogspot.com/2009/10/count-down-begins.htmljesscaandrews@aol.com (Jessica)2tag:blogger.com,1999:blog-6569482492645810768.post-6789326299883719747Fri, 02 Oct 2009 17:47:00 +00002009-10-03T09:53:25.193-06:00I have made the drive up to the hospital more times then I can even count. A total of 15.2 miles to be exact. I share a lot of memories with this freeway. A beautiful freeway I might add. Though I might get sick of the drive I will never get sick of the beautiful scenery. The drive allows me to just think. I think about lots of stuff mostly stuff that pertains to Jonah since he is the reason I dohttp://fourinthefam.blogspot.com/2009/10/my-inspirational-thought.htmljesscaandrews@aol.com (Jessica)4tag:blogger.com,1999:blog-6569482492645810768.post-5758366580330418539Wed, 30 Sep 2009 17:28:00 +00002009-09-30T12:25:48.866-06:00Not much news, but like the saying goes no news is good news! We have established a routine which is always good in my book. I get up to the hospital around 8:00am just in time to talk to the Rt about how J sounded. The nurse come in to give morning meds(a job I gladly hand over) Then she sets up his feeding pump for morning feeds. He is usually finished around 9-930ish. Then I put Jonah in the http://fourinthefam.blogspot.com/2009/09/no-news-is-good-news.htmljesscaandrews@aol.com (Jessica)1tag:blogger.com,1999:blog-6569482492645810768.post-3101198183414012856Mon, 28 Sep 2009 20:13:00 +00002009-09-28T21:50:52.932-06:00It's been a rough start! But I am finally feeling better about things. Keep praying for Jman and sending positive thoughts my way. I can't even tell you how much they really do help. yesterday Jonah's lips started turning blue. I was glad that it happened here so the nurse could see what I have seen on a daily basis. (however this has not occurred for a little while now) She wrote a not on Js http://fourinthefam.blogspot.com/2009/09/update-update-read-all-about-it.htmljesscaandrews@aol.com (Jessica)4tag:blogger.com,1999:blog-6569482492645810768.post-6019770622211795079Fri, 25 Sep 2009 21:10:00 +00002009-09-25T16:21:57.318-06:00He's Not Just anyone, He's my son...A song that I constantly revert to when I feel like all of this is just to unbearable. I thought this hospitalization would be different...better...nope.Jonah was NPO(no food or liquids)for 8 hours yesterday. We were asked to be up at the hospital at 1:00pm. I hurried and picked up Mo from school, and headed over to a friends house so Morgan could play until http://fourinthefam.blogspot.com/2009/09/she-tries-not-to-cry-as-tears-fill-her.htmljesscaandrews@aol.com (Jessica)4tag:blogger.com,1999:blog-6569482492645810768.post-5826070557715195260Mon, 14 Sep 2009 23:32:00 +00002009-09-14T17:55:56.059-06:00It's been over a week I guess it is time for a new post. Before I start I just wanna give props to the Italian who created the cannoli! MMM It's my favorite desert ever. It can turn any frown upside down.The wonderful Dr Pfeffer called me last week to let me know that Jonah will be admitted on the 24Th. He will be there for a bit, 10-14 days. He has been running a fever for over a week and just http://fourinthefam.blogspot.com/2009/09/monday-monday-so-good-to-me.htmljesscaandrews@aol.com (Jessica)4tag:blogger.com,1999:blog-6569482492645810768.post-3441121374025813944Sun, 06 Sep 2009 02:37:00 +00002009-09-05T20:57:17.050-06:00So Jonah is sick once again. He has been since last week. I called the doctor Monday, after Jonahs sats were droping into the 80's. His work of breathing was increasing and I started to kind of freak out. I was having flashbacks of how this usually ends up... in the ER!Jonahs doctor told me to start him back on steroids (pred) so I did, this time welcoming the stuff. Anything to keep him out http://fourinthefam.blogspot.com/2009/09/prednisone-hearts-my-son.htmljesscaandrews@aol.com (Jessica)2