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Today strated early, or yesterday never ended...I'm not sure. I just know my feet are killing me, my bed is calling me, it's 11:15 at night and I am still waiting for laundry to finish. And then...finally...GO TO SLEEP. I hope Jonah didn't here me type that! Heaven knows as soon as I fall into my nice warm bed Jonah decides it's probably time to let out a heart wrenching squeal! And from there...Well, I'm to tired to even think about how tonight will go.

We have had a more then difficult weekend. Not all bad, On Friday we were invited to go to a birthday for the sweetest little guy,Jaxson . It was fun, and I am assuming the kids had fun as well, however Jonah did not miss the opportunity to show off his head banging and the squeal. None the less it was a fun night, and I was slightly liberated by taking him out of the house. I felt so unbelievably normal there at the party. There were a few kiddos on oxygen as well. No one stared or made comments. It was just amazing being in the presence of so many other kiddos who have fought just as hard as Jonah to stay alive.

Saturday was hard.

Sunday Jonah was hooked up to his polsox most of the day. His Sat's were in the low 80's not on oxygen and when he was put back on O's he was sating at 93 on a liter and a half. That's a lot of oxygen for Jonah and not be sating in the higher 90's was kind of bothersome. Today he has been full of mucus. I wish he would just know that the tickle in his throat means to cough. Ah, what to do....

This morning Jonah had his Six month eval/renewal with Early Intervention. His OT went over his results from the testing from last week. Results:
Gross Motor- 11 mo, Fine Motor-18 mo, Cognitive Development- 15 mo
Language-10 mo Self Help- 12mo, and Social Emotional-24 mo.

I'm not sure why this is so hard for me to look at. I thought I was officially out of denial. I would think that by being with him every second of the day I would know just the same as some test, but still it's hard to look at on paper, and for others to look at and know that Jonah is not normal. It hurts. I can't let it get in the way of our day to day life. I do understand that these tests need to be done.

Tomorrow Jonah and I will be going to a place here in Utah who carries equipment for children with those special needs. Jonah will be fitted for a helmet and we will be taking home a feeding chair. I am looking forward to the chair! I will post pics as soon as he is measured for it and it is all set up.

Jonah has been banging his head so much! It started about a year ago. Jonah would bang his head for what they call "input." ( he has difficulties getting enough stimulation) He has some sensory issues that we work on daily. About 4 months ago the head banging got more and more aggressive. Where he is leaving bruises on his head. He does it harder when he is throwing a fit, mostly because he can not communicate that of what he wants. It is super stressful...for both of us! I bought him a skate board helmet in hopes that it would solve the problem...NOPE! He found a way to make it slip off. So this new helmet should be exactly what he needs. I guess we will just have to see.