Life is like a box of chocolates

Last night I made a big deal about how I am a changed women! And by that I meant that I was now going to be going to bed no later then 9:45pm and 10 at the very latest. Well here I am at 11:16pm typing away at my blog waiting for a test to load up for my music class.

Life is like a box of chocolates. In an instant so much can change. Some times for the better, and sometimes for the not so good. But every day choices land before us and it is up to us at that time to make the choice that will be best for our path in life. So here I am at 11:17pm typing because I have so much running through my brain. Mainly the fact that I am a very blessed individual.

I know I have mentioned before how humbled I have become with the circumstances that have been tossed in our direction, on that note I have also been so so incredibly blessed. And those blessings have not stoped. I know that some are in tune with what are needs might be and have stepped in with no questions asked. Thank you to you. Thank you Gma & Gpa, Doug & kathy Jo, Grammy, Mom & Richard, anonymous friends, Becky, Melissa, Bethany, Susie, Cate, Meghan & Alie and so many many more (I forgot to write my acceptance speech) It brings tears to my eyes that you care so much. I don't think I have ever felt so loved in my entire life. I finally understand that I am not alone in all of this, That we (my Family) are not alone. I know we all had hopes that Jonah would be better by now, It looks like we are in it for the long hall. That's okay. For those of you who have never met Jonah I'm sure you can tell by the spark in his eye that he is a life changing kiddo. He is so special to me. I hope that through the years I will continue to share this story with him. The story about how so many people cared so much about our family. I love my little boy so much. I am one lucky mama!

Happy Birthday Jman!

My baby is two today. I am filled with lots of emotion. I am so grateful to be celebrating Jonah's second birthday with him. He has come so far. He is truly an example to me. He reminds me daily not to judge others, to be all that I can be, and to smile, even at the little, very little things in life, and to remember life is good.

I wish that we could have a big celebration for Jonah. Unfortunatly, Jonah's birthday lands during rspiratory season so we will just celebrate his birthday with the family. That's okay. Life really is good.

flame of hope

About six months ago I met a young lady in her early twenties who like Jonah, suffers from Bronchiectasis, and has just been denied for a lung transplant. At this point it would be to risky for her. She has been my go to gal for many questions that I have about the disease. It breaks my heart to know that she is not doing well. She is amazing. She is brave.

I read this poem and thought of her and then I thought well, this pertains to many of us.

The Four Candles, Author Unknown

The Four Candles burned slowly.
Their Ambiance was so soft you
could hear them speak...

The first candle said, "I Am Peace, but these days, nobody
wants to keep me lit." Then Peace's flame slowly
diminishes and goes out completely.

The second candle says, "I Am Faith, but these days, I am
no longer indispensable." Then Faith's flame slowly
diminishes and goes out completely.

Sadly the third candle spoke, "I Am Love and I haven't the
strength to stay lit any longer."
"People put me aside and don't understand my
importance. They even forget to love those who are
nearest to them." And waiting no longer, Love goes out
completely.

Suddenly...A child enters the room and sees the three
candles no longer burning. The child begins to cry, "Why
are you not burning? You are supposed to stay lit until the
end."

Then the Fourth Candle spoke gently to the little boy,
"Don't be afraid, for I Am Hope, and while I still burn, we
can re-light the other candles."

With Shining eyes the child took the Candle of Hope and
lit the other three candles.

Never let the Flame of Hope go out of your life.
With Hope, no matter how bad things look and
are...Peace, Faith and Love can Shine Brightly in our lives.

Happy Halloween

I took a few Pre-Halloween pictures last week at a party we went to. Jonah a Pumpkin and Morgan an Astronaut of course.

One Million Dollars...What would you Do?

If I had a million dollars... I'd be rich.

first I would pay off these ridiculous medical bills that will forever haunt me, and in some cases never stop growing.

I would hire medical respite care for a few hours each week (mom's need a break too)

I would then hire respite care for some other mamas I know, who also need a break ;)

I would add another bathroom to my house with a full add on to the back...Oh and a new roof...ours isn't looking to good.

I would pay back all those wonderful people who have helped us financially.

I would donate money to help better research for lung diseases & lung transplants.

I would take two of my most favorite doctors (Parzych & Pfeffer) some where nice for dinner...& most of the RT's & RN's who are now like family.

I would hire a Gardener to create our very own Angels Garden (like at PCMC)...no green thumb here

I would build a special shelf that could house all of Jonah's medical equipment so his room did not resemble a hospital room.

I would take Morgan somewhere over the rainbow, she too has endured so much.

I would buy the time to make a difference in Congress to make the life's of special needs children a priority in stead of a budget cut.

I would pay it forward to all of those people; family, friends, & strangers who have helped us on our journey and who continue to help & support.

Then in the end I would have no more money, but I will still be rich...