Mr Jonah is an extremely odd child when it comes to his health, but has become wonderfully delightful when it comes to his personality and his looks...well, he is a small bundle of cuteness overload!!
Jonahs blood work (labs) came back 2 weeks ago. They showed that Jonah does NOT have a t-cell deficitantsy (yay!). But that indeed there is great concern about the "memory" of his cells. I don't want to get that much into the findings, (due to a former post that I learned a hefty lesson about) but Jonah's body is responding to each illness he catches as though it was the first time he was ever exposed to it. This is perhaps why a cold that would make you or I feel just a little congested, wipes Jonah out and sometimes lands him in the hospital. His immune system is not "remembering"...but indeed he does have one!
We will be doing more tests and more blood work over the next two months. If the doctors do not see a difference within some of the tests, then Jonah will start a process called IVIG. (click to read more on IVIG)
Jul 17, 2011
Jul 14, 2011
What's best?
Some days I wish that time would stop ticking away. I need to catch my breath, feel my pulse, and hear my exhale. I need to find my center. I need to feel connected to me once again. I must learn how to stop, how to focus and most importantly how to deal.
I think I have decided to take fall semester off.
No good reason, only that I need a long (really, really long) mental health day (semester). I have been deliberating with my self as to what the "right" decision is and I am at a stand still. Both are reasonable choices... Go to school in the fall, continue towards my higher education, or take time off and re cooperate, acknowledge, digest, except, and center myself from what the last 3+ years has dished out. I still find myself in denial.
Because of that denial I have chosen to turn my cheek and not deal with life in a meaningful way. Instead I cram as much as I can into every second of everyday doing things for everyone.... everyone but me, just so I don't have to deal with the emotions that have been building and building. Oh, and have gained quite a few Lbs too.
Both kids will be in school full time starting Fall. Though this decision makes me feel uneasy, makes me feel like I am a lazy person, makes me feel like I'm letting myself and others down I recognize that this is the attitude and self judgment that I continuously place on myself. Very unhealthy I might add.
Who knows, I may regret this decision or this might be the best choice I have made for my sanity. Because time will continue to go forward I will learn the consequence of this decision soon enough. Let's hope it's a beautiful one.
I think I have decided to take fall semester off.
No good reason, only that I need a long (really, really long) mental health day (semester). I have been deliberating with my self as to what the "right" decision is and I am at a stand still. Both are reasonable choices... Go to school in the fall, continue towards my higher education, or take time off and re cooperate, acknowledge, digest, except, and center myself from what the last 3+ years has dished out. I still find myself in denial.
Because of that denial I have chosen to turn my cheek and not deal with life in a meaningful way. Instead I cram as much as I can into every second of everyday doing things for everyone.... everyone but me, just so I don't have to deal with the emotions that have been building and building. Oh, and have gained quite a few Lbs too.
Both kids will be in school full time starting Fall. Though this decision makes me feel uneasy, makes me feel like I am a lazy person, makes me feel like I'm letting myself and others down I recognize that this is the attitude and self judgment that I continuously place on myself. Very unhealthy I might add.
Who knows, I may regret this decision or this might be the best choice I have made for my sanity. Because time will continue to go forward I will learn the consequence of this decision soon enough. Let's hope it's a beautiful one.
Im Back... and Im wireless...kinda!
Ah Finally! I have not had my laptop or PC running in an entire month! (relying solely on a smart phone bites and I don't envy those who do this as a constant!) Mr. Jonah broke something that hooks into the computer.. yadda yadda we needed to get wireless I procrastinated we went to the mall last Friday ran into some wireless Kiosk peeps signed here initialled there... waited a week for some guy to do something and walla I have spent the last hour and a half installing our new Qwest wireless only to unhook and learn that I have no clue what the hell I'm doing. and so folks I'm online and wireless, but ironically still hooked up to cords because I'm not sure how to be online and unhooked. Lame!
I have lots to share, but I will break it up so my posts don't drag on.
I have lots to share, but I will break it up so my posts don't drag on.
Jul 5, 2011
Holding on tight
I'm typing from my phone so please excuse any crazy typos. Last monday I took jonah in for blood work.when the results came in the doctor thought it would be best to have an immunologist go over the results because true to jonah style, his labs were peculiaa nd difficult too read.i made the appointment with immunology and was told the next available appointment would not be till august 18. I asked to be placed on a cancellation list and much to my surprise j landed himself an appointment for tomorrow morning. I am so nervous! I am fearful of everything when it comes to my baby. My brain cells are fried I have no clue as to what I need to ask.
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