My my my, what a day, day 3 has been. We were so busy the day just flew bye. Jonah spent the morning in the FYE (forever young zone) we played with a sweet little boy who has CP. Jonah wore himself out so I ended up caring him back to his room for he had zero energy left. A great way to use your energy I might add. I love seeing him happy, its medicine for a mommy's soul.
The pulmonary doctor came up around 7 to discuss the chest X-ray. He does indeed have acctalectasis...(collapsed area of the lung) He also has a tiny bit of fluid in his lungs as well. I can't help but feel sick about this. Dr Pfeffer mentioned that maybe it wouldn't be such a bad idea to have Jonah go back to Denver Children's hospital to look at his FEV1 counts and get a better idea of things. She asked my opinion and I told her I would go, but I would like for her to do another bronchoscopy on him first to see if that does anything. (Bronchoscopy, or bronch, "power washes" the lungs then the goop/secretions are suctioned out) this will require Jonah to be put back on a vent for the procedure. We both agreed that this would be a great first step. The doctor will look to see if she can get him in on Tuesday. If not I asked that we do it in late spring due to all of the respiratory crap that is still floating around up here.
So...that's the summery of day three.
Morgan & Jonah 2008
Jonah's Great Strides Team
About Me
- Jessica
- Isaac and I started dating when I was sixteen years old and a Jr. in high school. We met at the Beach Boardwalk, on one of those warm santa cruz summer nights. We married three years later in the Salt Lake temple. We then kissed our families good bye and moved out to utah to start our new life together. We immediatly wanted to start a family but that just was not in the stars for us. Five years later we were blessed to find out I was finally pregnant. I was only able to carry our baby for thirteen weeks before I miscarried. I was devistated! Our prayers were answered and three months later I was pregnant again and walking on egg shells. In March of 2006 our beautiful Morgan was born. Then eighteen months later our angel Jonah was brought into this world via C-section. Life has been a roller coaster, many ups but this past year many more downs. Today we are learning to live, laugh and love as a family with the challenges that are thrown our way.
Morgan
Jess & Isaac
6/4/01
Morgan at the farm
California
Jonah
Me & Hubby
Does Denver have a great CF clinic or something? I love Pfeffer, she is my favorite. Does she do the bronch herself? I'm sorry we didn't get up today, its been a long couple of days! We'll get up Monday or Tuesday for sure, but the munchkin will have to come along. Do they put Jonas on percautions when he's there? I know they make them wear masks sometimes. I'm not sure why that is.
ReplyDeleteI so wish that there was a magic answer for Jonah. I know how hard it is for you and I want everything to work out. I hope you can get a broncho done before you leave.... but if not, I guess you can go back. I am praying for some answers for you and if you need anything you know how to find me!
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