“The only people for me are the mad ones, the ones who are mad to live, mad to talk, mad to be saved, desirous of everything at the same time, the ones who never yawn or say a commonplace thing, but burn, burn, burn, like fabulous yellow roman candles exploding like spiders across the stars..."
- Jack Kerouac (1922-1969); American novelist and poet
Oct 29, 2011
Oct 23, 2011
Crow Troubles
But then...The frustration set in
Oct 18, 2011
Change is in The Air
Parenthood. One of my most favorite television shows on the NBC network, and yet I get so frustrated while watching it. I suppose it's because I see so many similarities that parallel with my life and my children... or child. (one of the kids on the show has Asperger's)
Jonah will be integrated into another classroom at the Autism school. The new class has a waiting list but 2 spots are currently open. Well I guess one spot, because Jonah took the first one. Jonah's teacher put his name on the list in September because she recognized the growth he is making. I'm excited. I'm nervous. I'm crossing my fingers that he will shine in this class as he has in his other 2. This new class has children who are on the spectrum as well those who are neuro-typical. From what I understand the flow of the classroom is different then what J has been used too. It is more relaxed and there is a lot more play involved. A lot more interacting with peers and less teacher directed activities. Jonah will not be in this class full time just yet, he is only being integrate so he will spend the mornings in his "old" classroom then in the afternoon, one of his teachers will assist him in the new classroom. For right now this will be the routine. We are hopeful that Jonah will thrive in this situation and be ready to move into the new class by next Fall.
Jonah will be integrated into another classroom at the Autism school. The new class has a waiting list but 2 spots are currently open. Well I guess one spot, because Jonah took the first one. Jonah's teacher put his name on the list in September because she recognized the growth he is making. I'm excited. I'm nervous. I'm crossing my fingers that he will shine in this class as he has in his other 2. This new class has children who are on the spectrum as well those who are neuro-typical. From what I understand the flow of the classroom is different then what J has been used too. It is more relaxed and there is a lot more play involved. A lot more interacting with peers and less teacher directed activities. Jonah will not be in this class full time just yet, he is only being integrate so he will spend the mornings in his "old" classroom then in the afternoon, one of his teachers will assist him in the new classroom. For right now this will be the routine. We are hopeful that Jonah will thrive in this situation and be ready to move into the new class by next Fall.
Oct 12, 2011
Empowered
Tonight I was invited to stand up for Jonah and share his story of Autism...or PDD-NOS
I met up with 5 other mamas who are just as passionate to fight for their child/ren and tonight we did so together! Together all 5 of us spoke of our children in front of our representative Tim Cosgrove. It was so empowering. I felt like in an hours time we helped him understand. We were able to give this a man a look into our lives and a daily battle with having a child on the spectrum. It was so amazing. There was a spirit there of love and compassion. Rep Cosgrove had to pause as he teared up trying to convey his support for us and our families . It was so heartfelt, so inspiring and so empowering!
I feel a change coming on! Please take a minute and follow this link!!!
https://www.facebook.com/autismvotes
I met up with 5 other mamas who are just as passionate to fight for their child/ren and tonight we did so together! Together all 5 of us spoke of our children in front of our representative Tim Cosgrove. It was so empowering. I felt like in an hours time we helped him understand. We were able to give this a man a look into our lives and a daily battle with having a child on the spectrum. It was so amazing. There was a spirit there of love and compassion. Rep Cosgrove had to pause as he teared up trying to convey his support for us and our families . It was so heartfelt, so inspiring and so empowering! I feel a change coming on! Please take a minute and follow this link!!!
https://www.facebook.com/autismvotes
Oct 11, 2011
Where have all my readers gone?
Seriously! Where are you? Leave some love (by leaving a comment) so I know I'm not just writing to the www.
Okay then.
Mr Jonah FINALLY was approved for Viagra! If you are just tuning in to this BIG story here is the DL. Jonah has Priapism. Priapism for Mr J means that he has on going erections lasting well over 14 hours. It is a huge discomfort as one could imagine and causes many many issues with him focusing on his tasks at school as well as in therapy. My fight with the insurance company went on for 18 months! 18 months! Finally I won. I usually do, because I am the mama bear who will not stop fighting for my boy.
Urology departments at the U and at PCMC still piss me off. Nothing new here. Why they won't send him to someone/somewhere to get this all figured out I do not understand, but believe me, One day I will win that too!
Moving on...
I took J in for blood work last week. The last labs that were drawn, 3 months ago (showing the immunologist that Jonah had not developed an immune response toward 3 vaccine) requiered him to be re-vaccinated (ugh!) and then do more labs. Friday we got results. Jonah has built a response to the vaccines! This is wonderful on so many levels! He is making antibodies. Because of this fabulous news he will NOT be eligible for IVIG. Shucks!
Isaac has found a temp job for the time being. This is awesome. Though we will not be rolling in the dough anytime soon, it's nice that he has something. We are blessed.
Miss Morgan has joined Girl Scouts of America. She is a Daisy, and loving it. She is so happy and delightful to be around...most of the time. I Love LOVE Love her!
Me? Well I am crazy as usual. stressing about anything that I could find to stress over. I think its habit. Its sad when you have to remind yourself to take deep breaths. My wonderful friend, Lacey Rugg moved. Very sad. Who will I commiserate with now? Anyone? Anyone?
Okay then.
Mr Jonah FINALLY was approved for Viagra! If you are just tuning in to this BIG story here is the DL. Jonah has Priapism. Priapism for Mr J means that he has on going erections lasting well over 14 hours. It is a huge discomfort as one could imagine and causes many many issues with him focusing on his tasks at school as well as in therapy. My fight with the insurance company went on for 18 months! 18 months! Finally I won. I usually do, because I am the mama bear who will not stop fighting for my boy.
Urology departments at the U and at PCMC still piss me off. Nothing new here. Why they won't send him to someone/somewhere to get this all figured out I do not understand, but believe me, One day I will win that too!
Moving on...
I took J in for blood work last week. The last labs that were drawn, 3 months ago (showing the immunologist that Jonah had not developed an immune response toward 3 vaccine) requiered him to be re-vaccinated (ugh!) and then do more labs. Friday we got results. Jonah has built a response to the vaccines! This is wonderful on so many levels! He is making antibodies. Because of this fabulous news he will NOT be eligible for IVIG. Shucks!
Isaac has found a temp job for the time being. This is awesome. Though we will not be rolling in the dough anytime soon, it's nice that he has something. We are blessed.
Miss Morgan has joined Girl Scouts of America. She is a Daisy, and loving it. She is so happy and delightful to be around...most of the time. I Love LOVE Love her!
Me? Well I am crazy as usual. stressing about anything that I could find to stress over. I think its habit. Its sad when you have to remind yourself to take deep breaths. My wonderful friend, Lacey Rugg moved. Very sad. Who will I commiserate with now? Anyone? Anyone?
Sep 26, 2011
Morgan, now a Kindergartener
Morgan has been in school for about a month now. Sad that I am finally getting to this post but better late then never.
It was quite sad sending her on her way to her first day of school. She was so happy and excited to go to school. Isaac and I were both sad to know that this day has come, it was bitter sweet for us of course. Her teacher is fabulous! Morgan never complains about going to school, but man do we hear it every night around 5pm when the homework needs to be pulled out of her back pack and onto the kitchen table. We are pleased to hear her reading simple books and writing down EVERYTHING! We find notes taped to the doors, refrigerator, beds and well, anywhere where tape will stick. Tonight we have a paper with the word 'SPIDER WEB' taped to our bedroom door. Ha ha, cute.
It was quite sad sending her on her way to her first day of school. She was so happy and excited to go to school. Isaac and I were both sad to know that this day has come, it was bitter sweet for us of course. Her teacher is fabulous! Morgan never complains about going to school, but man do we hear it every night around 5pm when the homework needs to be pulled out of her back pack and onto the kitchen table. We are pleased to hear her reading simple books and writing down EVERYTHING! We find notes taped to the doors, refrigerator, beds and well, anywhere where tape will stick. Tonight we have a paper with the word 'SPIDER WEB' taped to our bedroom door. Ha ha, cute.
Sep 23, 2011
Hello Blog, forgive me for not writing....
I think I am finally exciting the roller coaster ride. Thank goodness because if I had one more free fall I was bound to fall out of my seat!
I've missed posting a ton of current events to which I will eventually get to. One being Morgan,s first day of Kindergarten and 2 being my amazing 30th bday!
You have much to look forward too!
I've missed posting a ton of current events to which I will eventually get to. One being Morgan,s first day of Kindergarten and 2 being my amazing 30th bday!
You have much to look forward too!
Aug 23, 2011
Little J is Back in School
Jonah started school this morning! I wish I was as ready as he was.
At 7am this morning I found myself running through WalMart, on a hunt for a "full size" back pack. I found one.... looked at it, looked at Jonah.. looked at the "pack-pack" again, said something (I will not repeat) and threw the bag in my cart and checked out.
The back pack goes down to Jonahs ankles. Very cute, not sure how useful this will be for him. I may need to talk to his new teacher about using the small back packs he used last year.
He did very well, though throughout the day he kept asking for "Abby"...sad. Abby is one of Jonah's teachers from summer as well as last school year. Though I read in his "take home note" he was doing well remembering his new teachers names.
This is J's first time being in school full time. His school uses a note book system to communicate with parents daily as well as parents to communicate with the teachers. I love it!
I'm very excited for what this school year brings. Jonah is a very well liked child by all who meet him and that makes me happy to see. This school is amazing and we are lucky to have Jonah excepted into their program.
At 7am this morning I found myself running through WalMart, on a hunt for a "full size" back pack. I found one.... looked at it, looked at Jonah.. looked at the "pack-pack" again, said something (I will not repeat) and threw the bag in my cart and checked out.
The back pack goes down to Jonahs ankles. Very cute, not sure how useful this will be for him. I may need to talk to his new teacher about using the small back packs he used last year.
He did very well, though throughout the day he kept asking for "Abby"...sad. Abby is one of Jonah's teachers from summer as well as last school year. Though I read in his "take home note" he was doing well remembering his new teachers names.
This is J's first time being in school full time. His school uses a note book system to communicate with parents daily as well as parents to communicate with the teachers. I love it!
I'm very excited for what this school year brings. Jonah is a very well liked child by all who meet him and that makes me happy to see. This school is amazing and we are lucky to have Jonah excepted into their program.
Aug 11, 2011
Name Them One by One
Not gonna lie, today was rough. Yesterday was rough. Im feeling discouraged. The best kind of medicine for a poor me- pitty party is realizing and being grateful for the ways you have been blessed.
My list:
My list:
- My beautiful children that I am in love with
- God is mindful of me and my family
- My health
- I have a place to call home and a family to share it with
- My washing machine and dryer
- Healthy food in my fridge, food starage in my garage
- Friends that love me, care about me, and remind me of this
- A car that I can drive to where ever and just cry if needed
- Doctors who saved Jonah's life
- Doctors who continue to help him
- Respiratory therapists who have touched my heart through Jonah
- Morgan's beautiful spirit
- My new subbing job
- Friends that have addopted me and my family into theirs
- An awsome ward
- My special needs friends...hahaha. You know what I mean....
- Books
- Technology
- Essential oils
- Meghan Crovo, Becky Rockwood, Jane & Beth, Lacey Rugg, Melissa Christenson
- Family near and far
Aug 2, 2011
Yikes
Yikes is right! So much has been going on Ive hardly a second to write a post on my neglected blog! Hmm, where to start. I guess I will start with the most devastating news. Isaac lost his job. Sucks. Really really sucks! But it's not the end of the world and we have been through harder times. We are fortunate to have a back up plan... a back up plan that would include me going back to work. I was offered a few jobs to my amazement and went for the one that best suits my family... aka Jonah's needs.
Isaac has been on the prowl looking for work and had one interview this morning at ARUP ( I mention this solely so that if you work there you will put in a good word) and then another one tomorrow for another company. AKA "the church."
My heart is sad. I always knew I would go back to work this year I was just hoping it would have been later then sooner. If I have learned anyhing from my life's given trials it is this; never get comfortable. Life is always moving god is always challenging his children to grow, learn and except. The burn from all this is still afflicting my vision, but time will take care of it.
Isaac's Dad & sis are on their way here! I am ALWAYS excited to have family come. Too often we are the ones traveling so it's nice to have family come to us.... oh wait, this means I have to clean the house...
Yikes! I better get a move on it is 11:30pm and I have work at 8am! hope a little bit of dirt doesn't scare them off ;)
Isaac has been on the prowl looking for work and had one interview this morning at ARUP ( I mention this solely so that if you work there you will put in a good word) and then another one tomorrow for another company. AKA "the church."
My heart is sad. I always knew I would go back to work this year I was just hoping it would have been later then sooner. If I have learned anyhing from my life's given trials it is this; never get comfortable. Life is always moving god is always challenging his children to grow, learn and except. The burn from all this is still afflicting my vision, but time will take care of it.
Isaac's Dad & sis are on their way here! I am ALWAYS excited to have family come. Too often we are the ones traveling so it's nice to have family come to us.... oh wait, this means I have to clean the house...
Yikes! I better get a move on it is 11:30pm and I have work at 8am! hope a little bit of dirt doesn't scare them off ;)
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